Here at Macmillan, we’re supporting Dying Matters Awareness Week (8th-14th May). It’s an important opportunity to talk about dying, death and bereavement and how we can support people in such times of need.
This year’s Awareness Week poses the question ‘What Can You Do?’
We know that everyone dying from cancer will have different experiences at different times. Reaching the end of life can be very difficult and may create many practical and emotional issues for those affected to work through.
Our focus is on making sure the right care is in place so everyone’s individual needs can be met.
Let’s look at what Macmillan can do right now for people who are nearing the end of their life.
- We can help people to find practical and emotional support at the end of life and through bereavement
Our Information and Support Services provide people with face-to-face assistance in every Trust’s cancer units. We also have free information and advice available online, through our Macmillan Support Line, in public libraries and elsewhere in communities.
- We can help our Macmillan Professionals develop the skills needed to provide high quality care
Having the right cancer workforce in place is a priority for Macmillan and we have more than 170 professionals working in hospitals and communities across NI. Many are directly responsible for providing end of life care and support to people affected by cancer. Some examples are our specialist palliative care nurses, GPs and various Allied Health Professionals. All our healthcare professionals are provided with opportunities to learn more about how to meet the needs of people affected by cancer at different stages.
- We can enable more people to use Advance Care Planning to record their wishes about how they receive care
Having an Advance Care Plan means that health and social care professionals will know what’s important to the individual and can make appropriate decisions. We have worked with the Public Health Agency to create ‘Your life and choices: plan ahead’ which is a booklet full of information on how to record your wishes.
- We can use our Community Palliative Pharmacy Project to help more people at the end of life stage to cope at home
This two-year project is underway right across NI. We have a Service Improvement Pharmacist in every Health and Social Care Trust, liaising with staff across the whole area including community pharmacies. This helps to ensure they have the right stock and training to address any issues. The project also aims for better quality of life for people receiving end of life care by avoiding unnecessary hospital admissions. We know that care at home is what most people would prefer and will continue seek new ways to make this possible.
- We can influence wider work to improve palliative and end of life care
Macmillan contributed to the development and implementation of the Department of Health’s Living Matters, Dying Matters strategy (2010-15). This is the most significant policy relating to end of life care to be created in NI in recent years. We now want to see new policy developments for ongoing progress in end of life care and patient experience. We are calling for a new dedicated cancer strategy for NI, including improvements in the quality and availability of personalised end of life care.
We know that too many people still lack access to appropriate end of life care and support. Right now, cancer is the cause of more than 1 in 4 deaths in NI. With more people being diagnosed than ever before, the need for high quality, personalised care will increase.
No matter which party takes responsibility for health and social care when the current political uncertainty ends, there’s no doubt that dying matters. Palliative and end of life care must remain high on the agenda and strategic decisions will be needed to ensure the right services are in place in the future.